I live with lupus! or should I say lupus lives with me. I was diagnosed in 2010 with SLE (Systemic Lupus Erythemotous). I was in so much pain I thought the world was coming to an end. After travelling between pillar and post a final diagnoses was made after about 6 months.

I had never heard of lupus and was totally overwhelmed and confused. I had just lost both my parents and wasn’t ready to hear I had a chronic and debilitating disease. I eventually sat down and channeled my feelings and thoughts onto paper and this led to a book, an autobiographical account of my journey with lupus. After being shy about having such a wayward disease and I refused to give it an identity. I needed to channel these feelings and thus I translated them onto the pages of my book. I became a voice for lupus sufferers and honour those who suffer along side us.

Since 2010 my disease has increased exponentially to include rheumatoid arthritis, osteoarthritis and sjogrens. I also have neurological bladder and hydronephrosis of the right kidney. Included in this chaotic mess is damage to the central nervous system therefore I have several nerve related conditions.

On the up side my book has been published after 4 years in the making and is available on Amazon and Smashwords. I wrote this book from my heart with soul and passion and share valuable insights about lupus and motivation and inspiration are the leading ladies of the autobiography. I want to share my book with the world and create awareness of lupus, the most misunderstood disease.

I hope my story, sharing my song and dance with others, will be beneficial to those who need the upliftment and some information, also just to know I get it! You are not going crazy you have lupus.